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NTR 'patient-reported outcome'

Open dillerm opened this issue 1 year ago • 4 comments

Label: patient-reported outcome

Definition: A data item that is about a report by a patient concerning a healthcare intervention. A patient reported outcome can include subjective feelings regarding symptoms, functions in daily life, physical, mental, emotional, spiritual, and social well-being, and satisfaction with healthcare that has been received.

Contributors: https://orcid.org/0000-0001-9625-1899, https://orcid.org/0000-0001-9990-8331, https://orcid.org/0009-0003-7246-1252

dillerm avatar Dec 21 '24 03:12 dillerm

@wdduncan could we simplify this to be "A healthcare outcome that is reported by a patient" (keeping the second sentence)?

dillerm avatar Jan 28 '25 21:01 dillerm

Suggestions to definitions from OHD meeting:

  • A data item that is about a patient’s health that comes directly from the patient. A patient reported outcome can include subjective feelings regarding symptoms, functions in daily life, physical, mental, emotional, spiritual, and social well-being, and satisfaction with healthcare that has been received.

  • Add https://www.cancer.gov/publications/dictionaries/cancer-terms/def/patient-reported-outcome as definition source.

  • Add skos:exactMatch http://purl.obolibrary.org/obo/NCIT_C95401

  • Add has_broad_synonym PRO (this an often used abbreviation)

wdduncan avatar Jan 31 '25 15:01 wdduncan

This all looks good! Should we mention in a comment or in the definition that a healthcare intervention need not be what the outcome is referring to?

dillerm avatar Feb 03 '25 20:02 dillerm

Yes. I think that would be a helpful comment.

cc @addiehl

wdduncan avatar Feb 03 '25 22:02 wdduncan